Vivir para ver...

(And no, it seems not to be one of the excuses the British tourists plead to get reimbursements after the holidays in Spain. I read it in an article read on daily telegraph, on 18th May 2015)

Grandmother diagnosed with rare syndrome for which there is no known still suffers from seasickness after voyage in 2012.

A woman who went on her first cruise to celebrate her 62nd birthday is still feeling seasick - three years later.

Grandmother Diane Morley and her husband Dennis were caught in a bad storm on the second night of their eight-day voyage to Norway in 2012. She said it was so rough she felt as if they were in a washing machine and has still not recovered.

Mrs Morley struggles with her balance and says her feet feel like they are on sponges and, at one point, things were so bad she contemplated suicide.

She has been diagnosed with the rare Mal de Debarquement syndrome for which there is no known treatment. She takes valium to control it, but says she feels as if she is "still in the ocean waiting to be
rescued".

Mrs Morley, a retired auxiliary nurse, and retired lorry driver Dennis went on the Black Watch cruise with firm Fred Olsen to see if they would like being on a boat enough to try a Caribbean
cruise.

The 64-year-old said: "Over the last three years it's just got worse. Last year, I had some surgery and
had to go under anaesthetic and that made it worse.

"It's 24 hours, it doesn't come and go it's always there. It's just awful, I still feel like I'm out in the ocean waiting to be rescued. The only way I can describe it is when you're in a car and you can feel the engine revving up, I feel like that all the time.

"When I sit in the bath and or when I'm near any sort of water it just really wrecks my head, everything just spins and it really affects my eyes."

Mother of one Mrs Morley, from Herne Bay, Kent, has to wear sunglasses when she goes outside to block out bright sunlight and lighting.

People often think she is drunk as she falls down and finds herself barging into customers at the charity shop where she volunteers. She struggles with basic household chores and has given up alcohol and coffee, which seem to aggravate the condition. Even when she tries to sleep, Mrs Morley finds herself wobbling and swaying, as if sleeping on a waterbed.

The only time she feels "normal" is in a car or on a bus, but as soon as they stop and she gets out the seasickness begins again, and often is even more severe. She added: "I just got so down about it I was thinking about suicide, I could never have gone through with it but I just felt like I had lost my life. It's sort of a grieving process you go through, I wasn't the same person who got on that boat. That person is still out in the ocean somewhere.

"My husband couldn't understand why I was struggling to begin with. I would say I felt sick and he just thought I was making an excuse for not doing something. But once I was finally diagnosed he started to understand the condition and he's really supportive now."

Mrs Morley said two days after the cruise she could barely walk and felt as though she was on a bouncy castle. She said her GP dismissed her as a "funny lady" - and told her to go and sail round the world on a boat.

She said: "I couldn't believe it when he said that, I was just in shock. I think he meant it as a joke, thinking that would solve all my problems. He just said to me, 'I knew you were the funny lady. I suggest you get on a boat and sail round the world for the rest of your life, that will solve all your problems'."

She had previously been diagnosed with vertigo after losing her father, retiring and moving house all in the space of two weeks in 2010. In 2013, she was diagnosed with Benign Paroxysmal Vertigo and was treated with regular Epley manoeuvres where her head was moved in a bid to balance out her ears. But one appointment left her so ill she was in bed for two days - and it became apparent that she was suffering from something else.

A specialist at Kent and Canterbury Hospital eventually diagnosed her with Mal de Debarquement syndrome, which affects fewer than 1,000 people in the UK. Mrs Morley is part of a group called the MdDS Balance Disorder Foundation which tries to educate people about the little-known condition.

Etiquetas: Cosas veredes